In '95 when E was born I remember searching message boards on the net for info on disabled parents. I was graduated from Prodigy to AOL. Google wasn't around yet.
I found information about families with one disabled and one able bodied parent. I found horror stories about ladies with Jodie's brand of cerebral palsy who had a child and the birth event caused them to be paralyzed.
I stopped searching the boards.
Here is a new message board from Ouch! that looks good:
BBC - MESSAGE BOARDS - Ouch! - Ouch! Parents
Jodie and I did go to one occupational therapy session prior to E's birth. I was surprised that most of the session was focused on me, the dad. Jodie and both have cerebral palsy, but my arms and hands are more affected. The main thing I remember from the session was handling a 2 liter bottle of water in a sling, simulating what it would be like to handle a baby.
Reality turned out to be much different. I never did carry Eric. We used a stroller inside the house to get Eric wherever we needed to. Jodie did the major handling of Eric when he was a baby, but I did everything I could to support her. I would distract him with a rattle when Jodie had to change his diapers. I crawled with him on the floor. I drove to the store to get more formula and Pampers. I was a dad.
Now we talk politics and history. I pick him up from football practice, basketball practice and baseball practice. I never miss a game. I am a dad.
Living and laughing with a disability - cerebral palsy; ordinary life, extraordinary circumstances.
Saturday, September 29, 2007
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