Living and laughing with a disability - cerebral palsy; ordinary life, extraordinary circumstances.

Friday, September 04, 2009

Her smile melts Mum's heart

My cerebral palsy is a hassle at times, but when I read stories like this I am thankful for all I have, and I am thankful to God for giving each of us grace and strength to deal with whatever we have to deal with:

Daily Post North Wales - News - North Wales News - Severely disabled North Wales girl given new lease of life: "TEN-YEAR-OLD Kara Downie melts her mum’s heart when she smiles. For her “happy little personality” shines through a raft of severe disabilities, including an incredibly rare condition where large parts of her brain are missing.

The youngster suffers from Holoprosencephaly, a major defect of brain formation where, instead of normal brain tissue, the skull is swelled with extra cerebral spinal fluid."

...


The problem spurred Caroline to get in touch with Surrey-based charity React (Rapid Effective Assistance for Children with potentially Terminal Illness), who have now provided her with a portable concentrator which can be installed into the family’s mobility car.


No comments: