Living and laughing with a disability - cerebral palsy; ordinary life, extraordinary circumstances.
Sunday, November 30, 2008
Your local paper from India?
Saturday, November 29, 2008
Genetic test to find out what sport junior should pursue?
E like baseball from the start. Age four, tee ball. Bat, glove - no idea what to do, but E and a team of preschoolers were figuring it out together. Abby hit the ball better than many of the boys. The garbage man's son did cartwheels in the outfield; he had way too much energy just to stand there. E did all he could to follow the coaches word. He liked baseball and continues playing to this day...and he is good at it.
Basketball for E started in the first grade. He played for the "Y". Dribbling the ball up and down the floor looks easy, but watching kids learn it is priceless. It's not that easy to start, but as they learn and practice, their moves become smoother and more natural.
Indoor soccer did not go well. A bunch of kindergartners running every which way. Confusion! Fun to watch, but E did not care for it.
Eric played football in the 3rd, 4th, and 6th grades. Football was hard for E. He does not like to get hit. Even so, E worked hard to succeed at it. He was a lineman and a kicker. He did well, but he just didn't like it. I liked the discipline of football - every player has a role, and every role needs to be executed for the team to have success. He skipped the fifth grade football. He was the one getting hit. We left the decision to him. He played football again in the 6th grade, but decided to take a pass on it this year.
The ugly part of kids sports is that kids want to have fun, but parents want their kid to be the best. The sports camps start at a young age anymore. We have striven to only have E participate in sports and sport camps when he wants to. Sometimes he is not sure, and we have to be "parents" and nudge them.
The thought of genetically testing kids to see what sport they would be best inclined for frightens me. I can see parents forcing their kids to do only that sport. I overheard a boy's father (E recently played baseball with him) say that his son played in two baseball leagues at once. Perhaps the boy liked it, but did he like it for himself, or for his parents?
The line is hard to figure out. Kids want to like what we like. Sometimes they will force themselves to "like" something to not disappoint us.
Trial and error seems to be the best way to figure out what your kid likes to do. The process of struggle and achievement teaches a valuable lesson of life. Genetic testing to circumvent such lesson seems like it could lead to disappointed parents and resentful kids.
Friday, November 28, 2008
Lesson from Down Under - child care collapse
Caught driving with no arms
Wednesday, November 26, 2008
Bill for Senate?
Tuesday, November 25, 2008
When you have to go...
Monday, November 24, 2008
Bush to blame?
Because these days, truth comes in two flavors. We have red truth and blue truth, but we are fresh out ofthe truth, the facts, unimpeachable and inarguable. Instead, Bush has overseen a government of legendary intellectual incoherence, where ideology is valued above competence, accountability is valued not at all and one is daily dared to believe the evidence of one's lying eyes. Bush seems to agree with Stephen Colbert: Reality has a liberal bias.
It happened again...
This has been a difficult post for me to write. Back in 1989 when I wrote about the grandpa and the two year old, I had a three inch news brief to go off. Without the internet around to let me dig, I made assumptions. The biggest was thinking that grandpa took his grandson's life and his own to save family and society the hassle. I related to the story that I was once that two year old with disabilities and an unsure future.
Before I write about Ryan and Kyle Dutter, I just want to say that I have no doubt the grandpa loved his grandson and wanted the best for him.
There is much more to this story than I will ever grasp. Unemployment, bankruptcy, and custody issues...not really our business to consider.
Psychiatrist – (behaviors, issues still
ongoing, but significantly better)
Endocrinologist- (puberty, monthly shot being
administered to control heavy onset of
puberty naturally produced at my age)
Ear-Nose-Throat-(drooling, minor surgery
completed..no more drooling!!!)
Pediatrician- (now have one, and this one
specializes in Autism)
Orthopedist-(Half leg braces for feet and legs
being used to help me walk better)
Neurologist- (Seizures under control at
present time)
Dentist- (minor surgery completed, all dental
problems solved)
Sleep Study- (sleeps 14 hours a day with
naps included, hoping to know if I am not
obtaining REM sleep)
Occupational therapy- (helping him move,
especially lower body so there is no falling or
tripping. Right foot is severely turned inward.
This is in addition to his school therapies)
Rehabilitation M.D.-(Oversees coordination
of all my care)
Wednesday, November 19, 2008
Didn't Bush Sr. usher in the ADA?
The Americans with Disabilities Act would be weakened by permitting state and local governments to make only a fraction of their public facilities accessible to the handicapped.
Video game simulates disability
Monday, November 17, 2008
"A" for presenting disability awareness to kids
Does Handigo The Game do everything I hope a virtual disability simulation would do? Of course not—for one thing, it represents blindness as darkness that lights up as the player navigates. But it’s an interesting first step, one that shows disability as a natural part of human experience. I hope the game is a harbinger of things to come.
I think it's a wonderful attempt to reach kids where they are at.
Prayers for this little Troy
Very cute little guy across the Pond...
Saturday, November 15, 2008
CP'er completes the PGA tour
I missed this story:
Sky News: Wheelchair bound man completes PGA
Here is a video:
Here is his blog. Note the ongoing tally of number of sodas and number of falls.
I can really identify with DJ!
Miracles sometimes require a trip back to the drawing board
Four years ago his leg was blown of during fighting in Fallujah. A couple from Portland brought him here to get help.
Great people making a difference.
Badly injured Iraqi boy fit with artificial leg at Portland hospital - Breaking News From Oregon & Portland - Oregonlive.com
I was a teen when this happened
Former temple followers move on, 30 years after Jonestown - USATODAY.com
Boys' day...
Last week, we got E's report card. Straight A's. To celebrate, he wanted to go see "Quantum of Solace". On the radio yesterday morning we heard a reviewer give the movie a thumbs down.
"I still want to see it, Dad."
Today, after the morning basketball camp, we went and saw it.
We both liked it. E nudged me a few times during the movie to let me know what different characters had done in previous Bond installments.
In the past I have gone to see "guy movies" with my friend Brad.
This was the first such movie E and I have taken in, just the two of us.
It was a big deal to him. It was a big deal to me.
'Solace' posts Bond's best opening - Entertainment News, Film News, Media - Variety
Friday, November 14, 2008
You are not alone?
The title seems strange to me. If you don' t believe in God, aren't we all alone?
Richard Davis won suit against A&E
He won $4 mil in a lawsuit over compensation against the A&E network.
When is a new season coming?
Thursday, November 13, 2008
Newspaper irony
I know we need to put up with ads to support online news sites, but please stay away from the annoying popup ads, and the long intro screens that force you to watch or read an ad.
There probably is not the online ad revenue available to support the local newspaper staffs of the past. Then again, there are now bloggers on every corner to provide more localized news than ever before, if you know how to dig for it.
Wednesday, November 12, 2008
Second and third graders...
REXBURG, Idaho -- Elementary students chanted "assassinate Obama" on a school bus in eastern Idaho last week, an official with the Madison School District says.
District spokeswoman Janet Goodliffe says the second - and third-grade students were young and most of them didn't understand what the word "assassinate" meant when they chanted it in reference to President-elect Barack Obama.
Tuesday, November 11, 2008
Bush: 'I regret saying some things I shouldn't have said' - CNN.com
Bush: 'I regret saying some things I shouldn't have said' - CNN.com:
"'I remember the conversation I had with my predecessor Bill Clinton,' Bush said. As a matter of fact, [I] called him yesterday and said, 'Bill, I'm getting ready to meet with the new president, and I remember how gracious you were to me. I hope I can be as gracious to President-elect Obama as you were to me.' ''"
Obama slurs at this school taken serious
I have trouble thinking that kids come up with this stuff alone. I wonder what they hear at home and in their circle of friends.
I know the frustration that the Republicans must feel right now. They lost...bad. The last eight years have been that way for me, when the Democrats could not find a message or a win.
Turning to slurs does not turn a loss into a win.
We need to remain faithful to our message and prayerful for our leaders.
We need to teach our kids to do the same.
Churches react to Obama win
Reaction to an Obama presidency has been swift and voluminous in churches across America. Here's a sampling of sermons and marquees:
"Exiles in an Obama Nation" marquee of Gracewood Baptist Church, Southhaven, Mississippi.
"God, Help Us" marquee in front of United Methodist Church.
"God has vindicated the black folk. Too long we've been at the bottom of the totem pole, but he has vindicated us, hallelujah...Because when I look toward Washington, D.C., we got a new family coming in...and you know what? They look like us. Amen." Shirley Caesar, Gospel recording artist and pastor of Mount Calvary Word of Faith (Raleigh, North Carolina).
Water bombed?
Monday, November 10, 2008
A sober view of W
It is remarkable how quickly the Bush presidency unravelled. It is difficult to argue contrary to the failure hypothesis, but it is important to make a distinction between Bush’s first and second terms...
A sober view of W
It is remarkable how quickly the Bush presidency unravelled. It is difficult to argue contrary to the failure hypothesis, but it is important to make a distinction between Bush’s first and second terms...
Moderates after my heart
Great sense of humor:
The governor deflected a question about whether McCain had displayed bad judgment in selecting Gov. Sarah Palin of Alaska as his running mate.
He also said that California First Lady Maria Shriver, a Democrat and a member of the Kennedy family, had been running around their house since Tuesday with a cardboard cutout of President-elect Barack Obama, gloating over his victory.
Schwarzenegger, who joked about Obama's "scrawny" physique while campaigning with McCain, said he was "proud" to see the American people elect their first African American president.
"I was touched by it," he said. "Democrats and Republicans should do everything they can to help this man and his administration to be successful."
But he said rumors that he would leave his post as governor to work in the Obama administration were not valid.
Dasani water from the Willamette
Locals know what happens to the Willamette when the storm drains overflow.
I won't ruin the Dasani experience for the rest of you.
Perfume disability?
Latest disability category: Multiple Chemical Sensitivity.
What happen to allergies?
Saturday, November 08, 2008
"In the name of no father"
“As a Unitarian, I think we would not ridicule somebody else for their beliefs,” Knox says. “We’re humanitarian. We believe in compassion.”
Which is one reason why Tuppman, for example, says she’s never liked the Christian story of a loving God sending Jesus to die on the cross for our sins, nor for that matter, the doctrine of original sin, the idea humans are conceived in a state lacking holiness resulting from Adam and Eve’s fall.
“I didn’t ask to be born, and I thought why should I have guilt on top of it,” Tuppman says.
Happy 90th Billy!
Friday, November 07, 2008
Thursday, November 06, 2008
Obama said the "D" word
"It's the answer spoken by young and old, rich and poor, Democrat and Republican, black, white, Latino, Asian, Native American, gay, straight, disabled and not disabled – Americans who sent a message to the world that we have never been a collection of Red States and Blue States: we are, and always will be, the United States of America."
Prayers for Obama
I hope this link works for you. Prayer is part of my life...not as big as part as it should, I'm sure. St. Paul told us to pray for our leaders.
For the past 7(?) years, PPT has seemed pretty Republican. Gee, I wonder why?
Today's edition has congrats and prayers for president elect Obama from Billy Graham (happy 90th), Mike Huckabee, Colin Powell, Chuck Colson, Peggy Noonan, and Pope Benedict XVI.
I have talked with people who fear with me the "Kennedy" feel of this being too perfect...that something bad might happen.
One of E's classmates even had the gall to hope that someone "just gets it over."
Obama will fail if he is alone.
I have always prayed for President Bush. Please join me in praying for President Elect Obama...you are not alone...and you will succeed!
Wednesday, November 05, 2008
Disabled employees in the Air Force
When I was a senior in high school, I was barraged with military recruitment mailings. I thought there should be military job opportunities for the disabled. I called. There was not.
I guess there is now...
Tuesday, November 04, 2008
Leonard Pitts: 'We' are finally part of `We the People'
Leonard says it so well:
There was something bittersweet in watching Michelle Obama lectured on American pride this year, in seeing African Americans asked to prove their Americanness when our ancestors were in this country before this country was. There was something in it that was hard to take, knowing that we have loved America when America did not love us, defended America when it would not defend us, believed in American ideals that were larger than skies, yet never large enough to include us.
We did this. For years unto centuries, we did this. Because our love for this country is deep and profound. And complicated and contradictory. And cynical and hard.
Now it has delivered us to this singular moment. Barack Obama is president-elect of the United States.
And we the people should be proud.
Obama elected 44th president - Decision '08- msnbc.com
Obama elected 44th president - Decision '08- msnbc.com
A dream come true.
Tears of joy and prayers of hope.
26 mile smile
Update on the New York marathon run by Nadine and Tyler McNeil.
EARLY FINISH Nadine McNeil, 42, who had a stroke when she was 8 and lost the use of her right arm and right leg, competed in the handcycle division of the marathon and finished in an unofficial time of 3 hours 54 minutes 59 seconds. Her 18-year-old son, Tyler, who is autistic, made his marathon debut, running a time of 5:07:48.
But McNeil missed her son’s finish. She said she thought his time would be about six hours, so she was nervously waiting in a finishers’ tent at 72nd Street and Central Park West. As she was about to head back to the finish line, Tyler arrived with his guide.
“My friends said he had a smile on his face for all 26 miles,” McNeil said. “I couldn’t be prouder of him. I would have been proud of him if he had run 50 feet and stopped.”
Portland delays disabled-parking decision
Tough issue. Needs of business versus needs of disabled.
Limiting disabled parking to four hours would help business.
We need a compromise. I worked in downtown Portland for 2 years. I took advantage of free parking using my disabled card.
Charge disabled workers a fee they can afford.
For disabled shoppers and visitors - sprinkle disabled spots around downtown. Pay once, lower the price, 4 hours.
Making anything free leads to abuse.
I know this is not the solution, but it is the kind of thinking we need to reach one.
Monday, November 03, 2008
Barack's Grandma - Rest in Peace
I felt bad when I heard that Barack's grandma had passed today, the day before her beloved grandson's great day. A grandma's pride is hard to beat.
Athiests advertise
"There's probably no God. Now stop worrying and enjoy your life"
Interesting...they seem uncertain...
"Life is too short to be sad"
"You go through times when you are very depressed, like when you have one seizure after another," said Hayes, who isn't allowed to drive because of her condition. "I have spent many times crying. But now that I am older, I have to understand there is something wrong with me, but life is too short to be sad."
Epilepsy is a hidden disability that, when a seizure happens, makes you the center of attention.
Openness and acceptance...wonderful story.
A perfect movie
A "nutty inventor" refusing to sell his inventions, opting to employ the disabled.
Inspires me!
Changes to the ADA
I confess, I am not as educated on the Americans with Disabilities Act as I should be, but some of the changes are interesting:
• "Disability" will be defined as "Physical or mental impairment that substantially limits one or more major life activities, a record of such impairment, or being regarded as having such impairment."
• "Physical" disability will be defined to include disfigurement, loss of function (reproductive, cardiovascular, skin disorders, endocrine system, urinary).
• "Major life activity" will be defined to include: walking, seeing, hearing, speaking, learning, performing manual tasks, sitting, standing, lifting, caring for oneself and working.
• A qualifying "mental disability" will include psychological disorder, organic brain syndrome, emotional or mental illness and learning disabilities.
• The term "substantially limits" means "unable to perform a major life activity that the average person in the general population can perform."
• "Being regarded as having an impairment" has been defined to mean an "employee is subjected to an action illegal under the act" and "because of an actual or perceived physical or mental impairment" and "whether or not it limits a major life activity."
• "Major life functions" will include: eating, standing, lifting, bending, reading, concentrating, thinking and communicating.
Sunday, November 02, 2008
National Daily faces 21st century reality
Whoever foresaw news "papers" becoming obsolete? But, here it is:
Monitor shifts from print to Web-based strategy
I am a news junky. I recently quit receiving home delivery of The Oregonian, opting only for the Sunday edition. On my desk I have a renewal bill for my local community newspaper, The Gresham Outlook. I read it online now. It is easier for me, with my disability, to navigate my way through the online version than through the paper version, but part of me hates to see the community "paper" go away.
Online news sites: please move away from login requirements. I want RSS feeds of my favorite columnists without that hassle!
Saturday, November 01, 2008
Marathon for diabled mother and son
Nadine had a stroke at age eight, losing the use of her right arm and right leg. She uses a hand cycle, and uses duck tape to keep her right hand on the pedal.
Tyler, her son, is autistic and the love of Nadine's life. He has a severe speech delay. A hoopster, a special olympian, and now a marathon runner.
Nadine will be passing by Tyler tomorrow in the New York City Marathon.
Here's to Tyler's first marathon!
Should mentally disabled be allowed to vote?
Analyzing a person's mental fitness to vote.
I don't thinks I'd pass the GOP's test.
I see a wild ride down that slick slope.