Living and laughing with a disability - cerebral palsy; ordinary life, extraordinary circumstances.

Monday, January 11, 2010

We're Marching to Victoria!

We received a phone call last week informing us that Jodie's Auntie Bev was gravely ill. Jodie's mom, Bev's sister, had spoken to her the week before and she had been doing well. She had emphysema and was on oxygen.

Jodie's mom and her sister, Denise, went to be with Bev. Jodie was not able to go with them because of the stairs going up to Bev's manufactured home, and the inaccessibility once inside the home. Last Wednesday the doctor's said that Bev had only a few days to live.

Bev was a character. The kind of character that puts a smile on your face.

The Aunt Bev that I knew was the Bev who sat with Jodie and I up at the hospital back in the early 90's. Brother-in-law Ken, Jodie's sister Denise's husband, had a brain tumor. Surgery was being done to relieve the pressure in Ken's head. We were all sad, but doing our best to pull for Ken.

Aunt Bev was a quiet rock of comfort. She had the bag of snacks, she had the puzzles, she had the words of comfort to pull us through.

Growing up, Jodie had many surgeries to increase her mobility. The surgeries were in the summer so as to not interrupt school. Recuperating in the heat of summer was not fun, but there was always Auntie Bev, with loads of books, smiles, encouragement and love.

Bev would help Jodie walk up and down the driveway singing "We are Marching to Victoria".

Jodie and Bev had a special greeting for each other "You're ugly and your mother dresses you funny!" One time Jodie shouted that across the gym at school when Bev came for a special function. Bev was so embarrassed!

This past Saturday we were driving to Eric's basketball game. Our phone rang. Pastor Karl asked the family to call Jodie to let her talk to Bev. Jodie was in tears...so was I. Last words are hard to say to a loved one. The phone kept getting disconnected, but on the third try, Jodie finally got it out: "You're ugly and your mother dresses you funny!"

After the game we got the call that Antie Bev had passed.

I can hear her singing "We are Marching to Victoria!"


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