Living and laughing with a disability - cerebral palsy; ordinary life, extraordinary circumstances.
Monday, September 29, 2008
This story is burning the blogwaves
California Tortilla Cashier Screams At Disabled Customer Who Accidentally Spilled Tray
New law in Cambodia
"We are urging the government to accept this bill that will defend the rights of handicapped people," said Ith Sam Heang.
"We believe that handicapped people should be recognised socially, publicly and by the global community."
Kudos!
Sunday, September 28, 2008
Meeting with Dr. Cooke
Wordpress changed her life
Friday, September 26, 2008
My Beavs stun USC
Thursday, September 25, 2008
Ike...
Wednesday, September 24, 2008
Ironies...
Tuesday, September 23, 2008
Fostering Connections to Success
Monday, September 22, 2008
Bye bye CD's...
Sunday, September 21, 2008
Disabled woman reaching out to disabled Iraqis
Kudos to open hears and minds at Mercy Corps.
Hank and Merritt Paulson
His son owns our local Portland Beavers and Timbers.
700 Billion bailout...trying to understand
- "Security" (Defense, Homeland, etc.): $553.9 billion
- "Global War on Terror" supplement: $145.2 billion
- Health & Human Services: $69.3 billion
- Education: $56.0 billion
- Veterans: $39.4 billion
- NASA: $17.3 billion
Friday, September 19, 2008
Thursday, September 18, 2008
Those in need...
Where would we be without the American Red Cross?
Pray and give...as you are willing and able.
A weekly landing spot
presidentialprayerteam.org
Yes, it can lean right...I lean right, and left, and all over.
I don't always agree with slants of views on this site. I am very much for tolerance, I also believe that Jesus' concern for the poor was multidimensional - poor of money, poor of spirit, poor of hope.
Right or left or "I dunno", praying for what is going on in out country and our world is an important duty we have.
The Presidential Prayer Team newsletter hits my email inbox every Thursday morning. I urge you to check it out.
And pray with your heart, mind and spirit...not necessarily theirs.
Wednesday, September 17, 2008
Watching the nest egg...
I love my Zune
Monday, September 15, 2008
The candidates an disablity
Disability News | PatriciaEBauer.com » News Archive » Guest commentary: Disability community should beware of Palin
When a young governor line-item vetoes six appropriations for community disability services or for accessibility modifications to public accommodations, that governor gives us reason to be skeptical about promises and prospective performance. When the appropriations totaled $749,000 in a state that has a huge budget surplus, and when the governor apparently knew at the time that her nephew has autism, that governor gives us special reason to doubt her commitment to people with special needs.
Sunday, September 14, 2008
Aunt Sandi...R.I.P.
I was sad to read she had passed. I feel bad that it has been eight years since I have seen her. I always felt close to her when I had opportunity to visit her.
Strangely, I feel closer to her right now.
I love you, Aunt Sandi.
Peace.
Saturday, September 13, 2008
Coffee can lid
Friday, September 12, 2008
Ike is on its way...
We know what Palin looks like...but what does she say?
Palin's worst moment came when Gibson asked if she agreed with the "Bush Doctrine." She clearly didn't know what the doctrine was, and after he let her blah,blah blah some platitudes, he told her and the audience what the Bush doctrine was (essentially American has the right to pre-emptive strikes against another country if it feels threatened).
A real professor probably would have failed her right there.
Thursday, September 11, 2008
Okay...
Lesson learned is to keep all 3 browsers working (IE7, Firefox 3, and Google Chrome) working so that when one stops working, I will have another to use to Google for a fix.
Anyone know why Firefox takes so long to come up?
Computer gods are funning with me!
Wednesday, September 10, 2008
Tuesday, September 09, 2008
Chrome and Flashe Player
Monday, September 08, 2008
Fall Ball
Sunday, September 07, 2008
Learning....not losing...
College football Saturday. I love watching the Oregon teams. I prefer the Oregon State Beavers, since I am an alumn.
Saturday, September 06, 2008
Paralympic Sport TV
You better get over that Olympic fatigue quickly. The Paralympic Games begin in less than two weeks and NBC's Universal Sports platform will have plenty of coverage. Live events and tape-delayed highlights from Beijing will stream atUniversalSports.com during the Sept. 6-17 event. Then, beginning Wednesday, Oct. 8, the Universal Sports digital cable channel will have three hours of daily coverage for at least seven days. Finally, on Saturday, Oct. 18, NBC will have a recap show.
Friday, September 05, 2008
Palin Effect
Rick Davis, campaign manager for John McCain's presidential bid, insisted that the presidential race will be decided more over personalities than issues during an interview with Post editors this morning.
"This election is not about issues," said Davis. "This election is about a composite view of what people take away from these candidates."
McCain chose Palin to overcome the magic of the Obama effect. Little vetting - McCain did not care. He desperately wanted to capture Obama like magic. Palin, unlike McCain, is easy on the eyes and ears. Hillary prepared us for women candidates with complications in there lives. We are use to Republicans pointing out these complications. It does not sound right coming from the Dems.
Thursday, September 04, 2008
New study of Cerebral Palsy
"Obstetric care and caesarean deliveries have increased six-fold over the last 50 years, but the incidence of cerebral palsy cases has remained the same. Most of the cases are associated with problems during pregnancy and possible genetic susceptibility. Currently there is no cure or way to prevent cerebral palsy," he says.
Disabled in the workplace - China
Broadening definition of Disability
"The courts are defining it expansively to cover people who are uncomfortable pursuing romance or find it difficult to have sex. And Congress is moving to expand the law to cover even more conditions."
Prayer for Aunt Sandi
My aunt (Sandi) is in Good Samaritan Hospital - Intensive Care
Unit (ICU). We are not sure if she is going to pull through. She went
in to the hospital last Wednesday 8/27/08. Her heart rate was at 210
beats/minute. She was experiencing what is called a "Thyroid Storm".
The medical team had managed to decrease her heart rate with medication
and the family thought she was out of danger and went home for the night.
Apparently a nurse at some point during the night for some unknown
reason removed my aunt's heart monitor. At some point a nurse entered
Sandi's room to find that she was not breathing & her heart had stopped
beating. As I understand the doctors/nurses do not know how long she was
in this condition. The medical staff worked for quite some time (I
believe about 30 to 60 minutes) to resuscitate her. Long enough that
they called my cousin's & told them that their mother had flat lined.
When my cousin's arrived at the hospital the doctors/nurses were still
working on resuscitation. During the time of Sandi being "flat lined"
her organs began to shut down. A week later she is clinging to life in
ICU in a medically induced coma. The doctors are still trying to get her
organs (lungs, liver & kidneys) to function. She now has pneumonia & one
of her lungs has collapsed several times. At this point she would not be
alive if it were not for machines. Her kidneys are now barely starting
to function after several dialysis treatments. Her liver is functioning
at a low level and I belive her lungs are functioning at about 10%. The
doctors are not sure if she will pull through and if she does pull
through if there will be brain, liver, kidney or lung damage.
Could you please add my Aunt Sandi to your prayer list? This is my
prayer for her & for the family. I pray for the complete, speedy &
miraculous healing of Sandi Dionne. I pray for all of her organs
including her brain, lungs, liver & kidneys to make a complete and speedy
recovery & function fully at 100%. I pray for a holistic healing of
Sandi Dionne mentally, physically & Spiritually and for God's Will to be
done. I also pray for our entire family that we have the strength &
endurance to walk through this journey keeping Spirit close at heart.
And pray also for Spiritual, emotional & physical healing for our entire
family & each family relationship within our family. May we all walk
through this journey with love & acceptance in our hearts for one another
and for wherever this journey leads us. Thank you God for all of your
unconditional love for each & every one of us every step of the way. God
Bless. And So It Is. Amen.
Thank you & Bless you.
Rena
Wednesday, September 03, 2008
IE 8...Beta
Trig has Down Syndrome
Baseball for disabled kids
Tuesday, September 02, 2008
Predictions market
Google Chrome
Target lawsuit settled
It had to do with their website and how accessible it is to the blind.
As a web designer hobbyist, it causes me to pause. The main point is that when you put a picture on the internet, you need to include a description of that picture. Also, they need to make their website more accessible for people who use only the keyboard and not the mouse.
I use Joomla to create websites. These sites are easy to make accessible. Lately, I have been migrating over to Google Sites -- easy to use, very Troyproof --but with little provision for accessibility. Disappointing...
Chrome
The download is not available just yet. There is a comic book explaining it.
I don't care for Internet Explorer. I like Firefox, but lately I have had to fiddle with settings to get various video formats to play.
I love Google!
Waiting....impatiently....
Monday, September 01, 2008
One last fling
For Jodie, vacation was not going to be complete without a trip to the casino. My attitude was why don't we just send them a check...why do we have to go there? I like the slots...too much. When I win, I keep playing and playing.
I thought about waiting until our anniversary next week and taking a vacation day to go, but neither of us think we will be able to take time off soon. So I relented. We took the two hour drive to Spirit Mountain.
Jodie and I take our scooters and out small bundle of twenties and we scoot from slot machine to slot machine in hopes of hitting our jackpot.
I was playing it cool. I kept cashing out and taking the tickets to different machines. I heard Jodie shouting to me. She came over and showed me her winning jackpot of $120+. Way cool!
Just a little bit later, I had a winning spin where I was asked to open clam shells on the touch screen. After touching about six or seven of them, my winnings were tallied. Over $130! I cashed out and took the ticket over to Jodie.
We went home about $100 richer.
We stopped at Applebee's on the way home for dinner.
A nice end of vacation fling and pre anniversary celebration.
To the State Fair
E liked the rides - bumper cars, tilta whirl (3 times), and the scrambler (twice). E also likes the game booths -- even though the chances to win seem to go down every year.
We all enjoy the vendor booths. Waterless cookware. Easy chairs that vibrate. Carved wood models. Leather goods (E bought a new wallet). Screen doors that disappear. This year there seemed to be a lot of hot tub dealers.
I like seeing all the animals. We scootered through all the barns. This is the only time of the year that I really see the rural Oregon way of life -- not just the cows and horses, the pigs and the goats (some as small as dogs), but also the farm kids and moms and dads, doing the work to keeps their stock up at the fair and realizing the hard work they do to contribute to our food supply.
I enjoyed a sausage on a stick, E went for a sub sandwich and Jodie had Thai noodles. I thought about the chocolate covered cheesecake on a stick.
The sights and people watching are the best parts of the fair. Moms and dads, kids in tow. Teens racing around, babies in strollers, and tired young kids not sure what to make of all this.
For us, family time is what the fair is all about.