Living and laughing with a disability - cerebral palsy; ordinary life, extraordinary circumstances.
Tuesday, February 12, 2008
Missing Tigard boy found...
E was thinking the worst happened to the boy. I said we can't think that way until we know for sure. It his hard in this day when the worst does happen some of the time.
Turns out he missed his bus, tried to walk home and got lost.
The police were surprised the boy did not ask for help. We teach our kids not to talk to strangers.
Thank God he is okay.
Missing Tigard boy found
Writer's got their flag on the internet...
Writers’ Strike: Why the Web Wins | Newsweek From Forbes.com | Newsweek.com
I can't wait until all tv is delivered over the internet.
It will be cheaper, more choice......right!!
Saturday, February 09, 2008
Madeliene
I took the right freeway exit, but I was in the wrong lane and I wound up back on the freeway. The Garmin took me off the next exit, and got my to the school. I like my Garmin!
We got to the school and E started freaking out because we didn't know where the gym was. Chill kid! The Garmin cannot help us with that.
We saw a guy walking across the parking lot. He looked like he might know where the gym was. He did. "Upstairs." Upstairs?
Jodie has a much more difficult time with stairs than I do...but stairs aren't my friend either.
She told me to go up with E so that one of us would be there. E and I made it upstairs. It was a long staircase with a short landing in the middle and a door to the right at the top of the stairs. E helped me with the door. When we got upstairs, the guy we had seen in the parking lot was up there. He said there was an elevator on the other side, that he would run it for us.
I went to the door and looked down the stairs. I wanted to go get Jodie. I froze. Going downstairs is harder than going up. I froze.
I went back into the gym and headed for the other door. I thought maybe the stairs there were less daunting. As I started toward the door. the guy came back and said the elevator door was looked, and they didn't knew where the key for the elevator was.
I felt bad that Jodie had to stay in the car. But her attitude was that at least one of us were there for E. And Pastor Karl came to the game...that was very awesome.
Our boys were behind the whole game. The highlight was a short run in the third or forth quarter where we went from being 20 down to just being 8 down in just a minute or two, but then it went back the other way.
It is frustrating when inaccessibility gets in the way. Church's and private schools do the best they can do.
I should be more militant...I know. I am a fan of Mr. Magoo. We muddle through.
Yahoo says no....
Bloomberg.com: Worldwide
Maybe Google?
Hmm....
Yahoo brand...Google is king of search...Microsoft is the behemoth in the corner.
Why did the proposed bid send Microsoft's stock down?
It's all about cloud computing....now I kind of understand.
Wednesday, February 06, 2008
Super Tuesday...Dems tie!
Clinton is loaning her own campaign money. Obama raised $32 mil in January alone.
McCain is doing well....yawn! The only thrill on that side is that his future running mate, Huckabee, is helping to knock out Romney.
Google being out-Googled
I am a Google addict!
I'm really surprised how upset Google is at the prospect of Microsoft buying Yahoo. Google's stock is down to $501. OMG! They were over $700 at Christmas!
Google is really whining.
Google is afraid that Microsoft is trying to take over the world.
The truth is that they are mad they didn't get to Yahoo first.
I hope this Blogger blog is still around tomorrow. Big Bro Goog...I'm sorry....
Saturday, February 02, 2008
Just heinous...
Disabled women used to kill 91 in Baghdad - The Boston Globe
I know that extremists have different values than I, but this is a new low.
Wednesday, January 30, 2008
Monday, January 28, 2008
Hey Ma...I need more straws...
The bag with 2500 unwraped straws is my preferrence, but the bag with 2000 wrapped straws is okay. This last bag was the wrapped straws...kind of Troy-proof (hard to open).
I use lots of straws. A bag lasts about a year. I have some left...just don't want to run out.
Thank you Ma!
931-442-3321
So, it's Star Travel regarding a time share that's not really a time share.
Huh....now I know.
Sunday, January 27, 2008
Good Samaritans helping the disabled in the West Bank
Inspires me that a country baptist church would bring these Muslim "Good Samaritans" in to hear of the work they are doing in the biblical town of Bethany.
"I In a place where religion is often a dividing factor between people, the organizations Alloush and Hamdan run will take anybody, no matter their creed or race."
I would not have what I have...a family and a job...if I were born over there. I am thankful to God for men such as these who make life easier for my brothers and sisters over there.
Disaboom article re: Presidential candidates stance on disability issues
The GOP is mute on disability issues save for John McCain. McCain has a life dedication to vets and worked on the ADA. Edwards has us in his platfrorm, Clinton includes us in her health plan, and Obama has his "Disabilities and Equal Opportunities Plan".
Thank you Renee.
Close call
A nightmare of mine is that the earth gets obliterated by an astroid. True worriers like me always have a pile of scenarios in their head to worry about.
I guess this worry can be retired until 2027...
Saturday, January 26, 2008
Keeping track of the race
Barack did well in SC today...but thoughts are that Hillary will sweep up on Super Tuesday.
I was at my nephew's basketball game last night. Two guys behind me were talking politics. Hillary scares them, but the one said Barack scared him even more. He is the "sexy" one among younger voters. He use to do drugs....once a druggy, always a druggy, you know. (I guess alcohol is different).
I am a right leaning Dem. I am disenchanted with both parties...let's get stuff done.
-Let's provide for our kids, birth through college, with health care. Supplement the best their family can provide with a benefit supplemental package so that quality health care is available to all kids.
-Let's provide for our kids, birth through college, with quality education. Preschool through college is important to all kids. Provide assistance or loans to supplement what parents can provide. No more unfunded mandates. Allow flexibility; communities are different, kids are different. One size does not fit all.
-Take care of our seniors as best we can.
-Allow the disabled to work without loss of benefits. Give them time to make sure the job will work out. Allow them to keep their medical benefits as needed.
-Rebuild our mental health system that has been ravaged by cuts for way too long. The high number of mentally ill clogging our prisons attests to this.
-Back out of Iraq as prudently as possible. A mess we never should have entered, but we are there, so we are responsible.
I confess that I am having trouble getting past the mudslinging of this delegate courtship to figure out who stands for my issues.
The guys who were talking in back of me last night would not vote for me. I would want more money from them in order to help our fellow Americans in need.
Wednesday, January 23, 2008
Disabled in Gaza
Sunday school, last week, Lebonan and Gaza came up...two sides to everything. Sad to see a paralyzed 12 yo's suffering made worse because we can't get along.
Tuesday, January 22, 2008
Disabled Football
I was thinking American football. This is the real football.
Very cool nonetheless.
12yo gets a cell!
Jodie and I showed up for Sunday school, and there was no class. We took of in Jet White down to a coffee stand and got a couple mocha's. When we returned, the one disabled spot we feel safe parking in was taken. We park at a bit of an angle there, giving me more visibility backing out. We parked in the back parking lot. I had to walk quite a ways to get to E's class.
I told E, "You know, this would be a whole lot easier if you had a cell phone."
He was hyped; I was committed. We went and got him his first cell phone, a grey Razr. He has 100 minutes.
Nephew Vance had a basketball game tonight. We were able to call E to have him meet us at the door with some of his cash so we could get in without making a trip to the bank.
Vance scored 28 points tonight...varsity 2a basketball. He kept making 3's!
Sunday, January 20, 2008
Red, White and Blue Tag Sale - New York Times
Red, White and Blue Tag Sale - New York Times: "The country is engaged in a fit of nativism and Lou Dobbsism, obsessing about the millions of Mexicans who might be sneaking across the border when billions in foreign money are pouring into Citigroup. You figure out what might be a bigger problem."
Saturday, January 19, 2008
Foreign countries buying up U.S. - like Monopoly
Everything is on the table...except the military technology....might want to keep that here.
Thursday, January 17, 2008
MYSQL bought by Sun
Since it is open source, it is typically free.
I rent webspace from Bluehost. $95/year I believe. I have 50 MySQL databases I could use.
When I saw that Sun Microsystems bought MySQL, I was concerned. Am I going to pay more to use MySQL?
The answer appears to be "no". They do plan to market an improved enterprise version of it.
How did Sun beat Google to buy MySQL?
Wednesday, January 16, 2008
Easy Writer
Handwriting is difficult for me. I have been typing since I was 7. I would love to have the freedom that handwriting gives. I wish I could try a Easy Writer on a tablet computer.
This still would not help me sign those pesky Visa receipts...not much left of the reciept when I'm done!
All relative foster caregivers will be paid
Title IV-E refers to the section of the Social Security Act that administers federal funds that partially reimburses the costs of kids in foster care.
I am a IV-E specialist, if you have not figured that out yet. A typical IV-E eligible child comes from a single parent home where the family was receiving a welfare grant, or would have been eligible to receive such grant had they applied.
Up until now, when a non IV-E eligible child went into relative foster care, I had to prepare a denial letter for relatives to explain why we could not pay them foster care $$. I would refer them to Self Sufficiency to apply for a non-needy relative caretaker grant, about half of what foster care pays.
I still have a job. We still need to optomize the federal funds...and we have a federal audit coming up.
It's just my stomach was always in knots when I had to explain to them why we could not pay them.
The dreaded part of my job is gone!
Tuesday, January 15, 2008
Mitt finally wins one...
McCain Moves Focus to S.C. Newsweek Politics: Campaign 2008 Newsweek.com
Michigan was stripped of there democrat delagates due to moving their primary so early. All dems but Hillary had their names removed from the ballot. Hillary got 57% of the dem votes. 38% selected "uncommitted".
'Blade Runner' will not compete...
I side with fellow blogger Matt Moscona:
Oscar Pistorius is an inspiration to many. He is a man who has accomplished more without the use of his legs than many of us with two good legs could ever dream of. Pistorius serves as an example to humankind that anything truly is possible. There is even a place where Pistorius and others who share the same afflictions and equal zest for life can compete. Pistorius belongs in the Paralympic Games. He should spend the Summer of 2008 in Beijing, but he should spend it defending the 200 meter crown he won at the 2004 Athens Paralympic games.
It is a tough call, because the my dream as a disabled person is to find things that I can do well enough that my disability is not a factor.
Sometimes we need to find grace and comfort in the greatness our differentness brings.
Friday, January 11, 2008
Tornado
I was a kid when the last one hit.
E has a basketball game in Vancouver tomorrow...I checked the map. Looks like it's in a untouched area.
Thursday, January 10, 2008
Jodie diagnosed....
The doc called a couple days ago to tell her that her thyroid hormone production was dangerously low. We freaked out a little, but doing some research, it sounds very treatable with medication. It sounds like a lifetime regimen, with frequent tests to make sure her hormone level is correct.
Hypothyroidism Causes, Symptoms, & Treatment on eMedicineHealth.com
Always something!
Janet & Obama
My stepdad's sister, Janet, has dedicated herself to the service of her country as a diplomat. She has been stationed several places throughout the world. She has spent a lot of time in Africa --- in Sudan, and more recently in Ehtiopia.
Obama stopped by in 2006. He was still considering whether to run at the time. Janet said that a young diplomat with them promised to vote for him if he ran.
Janet says "Maybe that decided him??!!"
Wednesday, January 09, 2008
Hillary won by a tear?
I feel for all the candidates. Such a long, difficult race.
Was the tear calculated? I don't think so....but maybe someone told Hillary that it's okay to be human.
Hope McCain wins. Flip-flopper...Dems would have have an easy go.
Meet and greet with Pastor Karl
Pastor Karl is meeting with each of the youth in our church and their families. Pretty ambitious!
E is starting middle school...and the confirmation process. My old baptist buddies don't understand this...but you know, it is a beautiful process. Kids study every aspect of the faith. They bond with each other, the teachers, and the church. Not the only way...but a good way.
During our half hour meeting, he asked some insightful questions, like "What do you like about each other?"
Cliche, I know, but the youth of the church is our future.
Thank you Pastor Karl.
Catch his e-vo's.
Sunday, January 06, 2008
Basketball game at Our Lady of the Lake...
The Garmin got us there a different way that I normally would have gone. I got confused at one point...by around the block..."recalculating"...the Garmin got us right back on track.
For those of you not from the Portland area, Lake Oswego is a small hamlet just south of Portland --- a high class area.
We arrived a few minutes late. We parked in the parking lot in the back of the building. Having not been there before, we didn't know where the gym was. E got out and followed the other kids and parents around as the figured out where to go. The correct door was found and it was up a long flight of stairs.
I can do stairs if I have to, but I avoid them when I can. Going up is not too hard for me, but I don't feel stable coming down. As a kid I dislocated in a knee on stairs are home, a memory always in my mind whenever a set of stairs is in front of me. Jodie can do short sets of stairs, but they need to have backs on them. She uses her forearm crutches, one in front and one behind. These stairs did not have backs.
Jodie told me to go watch the game. I told her I would go scout out the accessibility. As I was heading for the stairs, a couple parents waived at us and said that if we drove to the front of the church, there was a ramp and they could let us in the front door.
I was moved that they were watching out for us. Readers of this blog might think it is a no-brainer that people would watch out for us this way, but if disability has not touched a person's life (personally, or through a friend or relative) , accessibility is not something that enters their stream of consciousness.
Jodie and I made it in and were able see the game. We sat with parents from the opposing team. Bob, a dad of one of our players, cleared us a spot close to the door. It kept Jodie more calm than usual. She really gets into cheering for the kids...kind of wild...loud...uncontrollable.
It was a good, close game. They lost it when they stopped playing as a team. Practices should be interesting this week.
Saturday, January 05, 2008
New Hampshire debate
Clinton was on the defense. Status quo vs. change. What did Clinton mean by "35 years of change?" Other bloggers are having fun with that. Interesting reflections by someone who saw Edwards at an event earlier in the day.
Huckabee...
I find Huckabee interesting. He is folksy, down to earth, and he is a Southern Baptist preacher. He also seems like a player....letting stuff slip out..."Who...Me?"
Newsweek has an interesting article about how Huckabee is making evangelicals nervous. Yes, he is a preacher, but the article notes that he is not willing to talk about it.
I am undecided. I have much more research to do.
Friday, January 04, 2008
Dr. Randy liked the website
http://twittren.net/portlandchiropracticgroup/
The race is on...
Strange how the race has become about identy - who you like, who you don't like - rather than issues.
Rush brought it up yesterday, Jodie and I talked about it last night.
I need to study issues...get ready for our primary...in MAY!
Thursday, January 03, 2008
Get that receptionist a computer!
Jodie called. An appointment was made for all three of us. E begged us to not make him go today. He had a math test he didn't want to miss. We tried to convince him that no time is a good time to go to the dentist.
E was taken back first, and then me. My hygenist saw that E and I were last seen in August, less than 6 months ago. Insurance might not cover a visit prior to the six months. The receptionists tried frantically to contact the insurance company, but could not get past hold.
I decided to come back in February when my appointment is do. We had them clean Eric's teeth. with his braces there is a better chance that insurance will cover him. Jodie is on a different six month schedule, so she was due a cleaning today.
Six months ago when Jodie filled out the appointment reminder card, she put "The Wittren's" when she should have just put herself. What amazes me is that the appointment schedule is not on a computer, but a paper calendar with patient-written post cards as the reminder.
It's not until the patient is in the office and the hygienist is looking at the file that the insurance time frame is looked.
Very old school...but so is the receptionist.
Hard to be mad, but it is irritating.
Platform: Disability awareness
From the report:
Her platform, acceptance of and accessibility for people with disabilities.
Sadie Quigley, Miss Idaho: "Show that it's okay that we all have similarities and difference and some may be just be more physical than others and it is okay to accept each other and love it each other for who we are."
I like her platform. Disability awareness seems like a cliche', but there is still a ton of room for education. I don't think people really get it until disability touches their life, or that of a loved one.
Miss America is moving to TLC this year.
Wednesday, January 02, 2008
Disabled mom and the best interest of the child
Lack of support system...very sad tale.
Tuesday, January 01, 2008
Communicator for the disabled
This guy isn't:
Christian Helle's Blog: Cepa Mobility - Enabling the Disabled
IE7 problems on Jodie's laptop
The connection box showed a red "X", as if something was wrong with the wireless router connection. My computer was finding the internet okay. It is plugged into the router. Eric's computer is connected over the wireless and it was finding the internet fine.
I went back to Jodie's computer and tried the Firefox browser instead of Internet Explorer 7. Firefox worked! IE7 just hung up.
I reset her computer several times.
I uninstalled her IE7, downloaded a new version, and reinstalled.
Still, her IE7 hung up.
I googled for a solution. One suggestion was to run a registry cleaning program. I did, and it found issues, but in order to fix them I had to register the program. I tried to do that, but the program was trying to connect to the internet via IE7....aye aye aye!
I was past burned out. I showed Jodie how to access the internet with Firefox...but today I went to searching for a solution.
I finally found a link on how to reset IE7. I found the "reset" button under the advanced tab in the "internet options" section of the control panel.
And guess what? It worked!
New Years Day tradition
Today it was breakfast at the Gateway Elmers. E was with us. There daughter, Autumn, is at Disneyland with friends this year.
We parked at the back end of the lot. These days I park Jet White where it will be easiest to back out. The wind caught my door when I opened it. It was straight out and touching the dark blue pick-up parked next to us. It left some white paint on the truck. I freaked. E noted that there was other blemishes of spattered paint on the truck. I tried to wipe it off. No luck. Lori looked. She didn't see a scratch. If the truck owner was concerned he could leave us a note...still--guilt...
We talked politics -- not knowing who to vote for and having a hard time caring, since Oregon's primary is so late, thus meaningless. We talked about friends and family. E talked a lot about history. He reads historic biographies, and soldier diaries. He watches the History Channel. Brad knows a lot about history. He and E hit it off in several areas. E wants to learn woodworking, and it sounds like Brad could help get him started.
Having an only child does present challenges. Keeping them entertained is hard. Activities, dogs, games, computer---he has them all. Still, we always hear "I'm bored!" When we are out with friends and E is with us, the conversation is as much for him as it is for us.
We came home to a few chores...and some football.
Happy New Year!
2007
We watched "Oceans 13" tonight, and played Bible Trivia.
Our new Sprinter, Jet White, and our California vacation were highlights of the past year.
2008 - will we make it to the Grand Canyon? Jodie and I both have dreams of having a home business of some sort. What will '08 bring?
Monday, December 31, 2007
Walgreens...where's that voice coming from?
"Turn your car off!" He voice was not too friendly. Our Jet White is diesel, and is loud, so the request was not unreasonable. What was unreasonable was that there was no face to go with the voice.
With the way my speech is affected by my cp, I don't like talking over speakers. I prefer seeing the people and them seeing me so they know why I speak with difficulty. I drop my debit card in the tray and they get my order.
Jodie gave the voice her name. The voice said there was nothing being held for her, that we waited too long to come in. It would take 30 minutes to fill it.
E came back with me later to get the prescription. He shouted into the mic "We need to pick up a prescription for Jodie Wittren!"
Virginia came to help us. She has helped me before. A friendly face with a name tag.
Much better than just a voice!
Saturday, December 29, 2007
Another wife in the car!
We were at Target in Fairview, OR, tonight. Our home is just a few miles away.
I turned on the Garmin. Earlier it was showing our location as Kansas. Finally figured out that you need to flip the antenna up.
The satellite picked us up at Target. I punched in our home address.
I drove out the driveway onto Halsey. The Garmin had wanted us to cut through Fairview Village.
I went down to Eastman. The Garmin was not happy. A female voice kept telling me what way to turn. When I did not turn as I was suppose to, she would say "Recalculating".
All the way home, the Garmin kept telling me to go right. It wanted me to take another street home and kept telling me to go right at every street I passed in order to get to that street. Each time it said "Recalculating".
We were all laughing, because every time is said "recalculating" it sounded more and more annoyed! Just like a wife!
Turns out the Garmin was trying to get us to another address the is similar to ours. I must have keyed in "av" instead of "pl". I'm not sure...I just know that we have had a lot of pizza places have a hard time finding us because our address is similar to a couple other locales.
My life story...every turn I make..."Recalculating!"
Jodie wants to change things
Jodie wants to move our office out of our garage into our third bedroom. That means emptying our third bedroom of he 300 plus doll collection. They will be going into storage, into the garage.
Last year our family added insulation and walls to finish our garage. We have two "L" shaped office cube-style desks so that it makes a square "U". I have my 13-inch tv in the corner. I like it out here in the garage...but it is colder out here. We leave the door open that leads into the family room when I am out here. Jodie and E are usually in the family room at night; I'm usually in the office. My objection to that plan is that I will be far away from Jodie and E at night. Jodie contends that she will be in the office more at night if it is in the house where it is warm.
Another piece of the equation is Bonnie and Clyde, our beloved mutts. Dachshund/Yorke mix, brother and sister -- they are wild and untrained. Owners to blame; we except that. We have gotten in the habit of leaving our bedrooms closed....otherwise they drag out all sorts of interesting stuff. Under the new plan we will keep stuff picked up and doors open. Faith and hope that they take the responsibility of having run of the house serious.....riiigghhttt!
As any good husband knows, you don't want to get in the way of a Woman and her plan...
Working during holiday week
Jodie has a lot more vacation time than I have. I am trying to save time for out Grand Canyon adventure next summer. Yes, I know the Roloff's did this in recent episode of "Little People". We thought of this before seeing them do it....
Work has been so slow. I am suppose to work New Years Eve day also. Jodie and E want me to call in sick. I am tempted, but in 18 years on the job I have not used sick leave this way.
But being at work when my family, and my brain, is on holiday is really hard!
Monday, December 24, 2007
The Christmas Star
Sunday, December 23, 2007
'Web of miracles' join soldier, disabled Iraqi boy - CNN.com
CP orphan from Iraq knows the power of prayer:
'Web of miracles' join soldier, disabled Iraqi boy - CNN.com
Saturday, December 15, 2007
New disabled parking rules coming to Oregon
The issue is the over use of the free parking privileges downtown (costing the city bucks), and the lack of disabled parking spaces available to true wheelchair users.
The law, as capsuled on the kptv website:
Senate Bill 716 directs the DMV to create a "wheelchair only" placard -- in addition to the standard disabled parking placard -- for Oregonians needing parking spaces large enough for a wheelchair-bearing vehicle. The bill requires some parking spaces to be reserved for use by wheelchair users only. Use of a wheelchair only parking space without permit will be a Class A offense with a minimum fine of $190.
The dmv website does not reflect this change yet.
I have several questions:
-Jodie and I use scooters. Do they qualify as a wheelchair?
-We use our scooters some of the time, but not all the time. Assuming we qualify for a wheelchair placard, are we breaking the law if we park in a wheelchair spot and don't use our scooters.
-When I use a scooter, parking close to the store is less important. When I don't use my scooter, my endurance is less. Parking close is more important.
Another website done...
Roger and Ronald Nitz, a pastor from Holy Trinity Church in Portland, are starting a new worship community, a "koine'" community, in Portland.
A week ago Friday I met with Roger for lunch. He wanted a website. He has reserved the domain names koinecommunity.org and koinecommunity.com. He knows that I do the website for our church, Resurrection Lutheran Church at rlcpdx.org. He wanted to see what I could do for them. I told Roger I could set a Joomla site for them.
Roger emailed me content and pictures...makes setting up a website much easier. All went smooth except for a couple days ago when I logged out of the admin area...and the site was blank. I spent a day sorting through this problem. I googled and found there was a bug in the latest version of Joomla that was causing this to happen. I read through a huge thread on a joomla discussion board, and I replaced three of the php files...bug "hotfixes". Still, this site would not come up.
I started a new joomla site, very reluctantly. I was afraid the same error I was having in the first site would happen in the second site. I proceeded to copy files from the new site to the first site - the hot fixes were not working anyway.
I noticed something different between the two directories where the joomla sites are stored. The permissions on the first directory were tighter than the permissions on the second site. I must have changed then permissions, but I don't know how. A changed the permissions back...and the website came up again. I was so happy!
The website is here. The last challenge was to change the color of the template to match Roger's blog. I had to dig through the template files to find the graphic that made up the top of the website template. It was a small rectangle divided into three differently colored sections. The rectangle is repeated across the top to form the template. I used the rectangle and paint fill tools to change the colors. To find out the colors from Roger's blog, I viewed the source code to find out the color codes.
A lout of work...I know...but it worked!
The last step is to forward the domains to where the website is stored on my host. The domains are currently registered through Network Solutions. I was going to do the forwarding for Roger, but they charge $12 per domain per year to do this. I was surprised, because Godaddy does not charge for this. I researched the two companies. Network Solutions has been around since 1979...the beginning of web time. Godaddy started in 1997. The two are the biggest companies in the biz. It would be cheaper to transfer the domains from Network Solutions to Godaddy and then do the forwarding. I sent all this in an email to Roger. He's probably scratching his head.
Nothing in webdesign is ever simple!
Saturday, December 08, 2007
Friday, December 07, 2007
Christmas program
I loved "You're a mean one, Mr. Grinch." At first it sounded disorganized, but then I realized that was part of the Dr. Seuss genius, finger painting with music if you will.
They combined with the high school band to play White Christmas.
The choir was spectacular. The program left my hands...I don't know the name of the songs. One song, I think it was German, they kept repeating a word...it was fun. One of the altos (high voice...right?) was just incredible!
We ducked out at intermission. E had verse to study....and he was hungry!
Thursday, December 06, 2007
Some Success...
I changed the template, I added the poll, and I got "e-vo" to work. e-vo is a devotion that our new associate pastor, Karl Hester, writes and posts online. People can subscribe to it so that when he writes a new one, subscribers have it e-mailed to them.
I use Joomla cms for the church site. I tried to get various Joomla components to this. I was googling error messages and editing php files. Nothing was working.
I had Karl open a blogger page. I thought I could pull in a RSS feed from that onto the website. Blogger does not produce RSS feeds, but rather ATOM feeds. I tried everything to pull those into joomla, to no avail.
I finally found a free third party program to do the trick, a widgit from Springwidgits. And I found a subscription program with FeedBlitz.
Tomorrow I am having lunch with Roger, a friend from church who ministers to the homeless. He wants a website. He has a good blog going. I am hoping I can help him. I just don't feel real confident in my web design abilities.
Wednesday, December 05, 2007
Saturday, December 01, 2007
Back to webdesign...
I am updating my church's website, rlcpdx.org. Our new associate pastor, Pastor Karl Hester, has taken interest in the site.
He has a weekly devotion that he sends out by e-mail. Currently he is using a myspace account for this, but he wondered if I could add this functionality to the website. I have spent last night and today trying to do that.
I use joomla for the church website. It a great open source cms (content management system). I found three newsletter componants that would do what Pastor Karl wants. One was too simple and not functional enough, one was way to complicated.....I settled on YANC. When I wrote a sample newsletter, and went to save it, it wouldn't save.
Yes, I am pulling my hair out.
I found a nifty widgit from Feedblitz to allow people to subscribe to my blog.
I am testing it out to see if it might be a good solution for Pastor Karl. The main advantage to this widgit it that people can subscribe without being a member, as it is with myspace.
The other night I was trying to create a new website for the church. I had to log in to my hosting account through cpanel to change a file name. I don't know how, but I ended up deleting all this files...the whole website! I don't know how I did that...
Tuesday, November 27, 2007
Thinking your way around...
Disabled could think their way around Second Life - ABC News (Australian Broadcasting Corporation)
Monday, November 26, 2007
Black Saturday...
In past years we have discovered that the best time to hit the mall for Christmas shopping is dinnertime, right after work.
For the last few years Jodie has expressed more and more interest in being one of the crowd waiting in line at a 4 a.m. Black Friday store opening. One of these years I will be waiting in the van as Jodie shops.
Shopping from a scooter under normal circumstances is tricky enough. People don't see you because you are just below eye level. When they do see you, people try to get around you anyway they can...but they won't let you get around them.
During Black Friday, any semblance of civility when people happen to see me would be off. That scares me to death!
Saturday afternoon after Jodie and E had finished putting the decorations up outside the house, I asked if they wanted to go to the mall to do some shopping. Jodie asked, "Are you sure?" She knows how much I hate the crowds.
We drove Jet White over to Clackamas Town Center. We got there about 3:30. Nowhere to park in back, so we went to the front of the mall. We finally saw an open disabled parking spot. I thought the car coming the other way would take it...so many people have the disabled parking placards anymore. Jet White is big and intimidating, but small cars are quicker and sassier. But behold, the spot was ours.
I took Eric shopping for Jodie first. An hour and a half later we met for dinner at Chili's. They were very accommodating for us with our two scooters...a very pleasant dining experience. Then, Jodie took Eric shopping for me. With one vehicle and one driver in the family, this is a good example of how we do things differently.
To my pleasant surprise, I did not find the crowds too intimidating...the parking lot was way worse. I didn't go in any of the small shops -- scooting around in some of those are impossible.
I found some additional elevators in the mall. The only 2 elevators I knew of before was the one at Sears on the one end, and the one at Penney's on the other end. Now there is a elevator in the middle of the mall (it is glass...I had to convince E that it was safe to go on), and I found a elevator at Barnes & Noble.
We left about 8. We actually had a good time at the mall...on Black Saturday.
Friday, November 23, 2007
Tuesday, November 20, 2007
Visit with Dr. Molly
I pulled up to the valet parking area. They thought I was delivering a person in a wheelchair...until they saw me. I have been there enough that they know me by face.
I gave them my name...I think "Croy" is what they got...almost "Troy".
They took the keys to Jet White. I figured they would know enough to not take our 8 in-a-half-foot tall monstrosity into the parking garage...unlike yours truly.
I made it to Molly's office at 2:30...right on time.
"Troy," the sweet voice behind the window asked, "Did you know your appointment is at 3:30?"
Uh, no I didn't. They got me in a half hour early.
I told Dr. Molly about the episode I had about a month ago. My chest was hurting, so I went and saw my main dr., and internist.
It was not my heart. It was the pleurisy, or whatever it is causing my chest pain. I had stopped taking the muscle relaxant and the pain reliever because Molly had told me to wean myself off them after the summer.
So on to yesterday's visit with Molly. She kind of left it up to me as to what to do. Take the least needed doses of the muscle relaxant and pain reliever needed to maintain. I told her that the pain in my chest mis aggravated when I do excessive walking. She said that we may eventually need to discuss mobility aides. I told her I have a scooter and a walker, but that each presents it's own hassles -- getting them in and out of the car. Molly empathized. Her daughter has cp and uses a walker sometimes.
In the end, it's all up to me. How much of the meds to take, when to use my walker or scooter.
It's up to me.
I have always liked to dr. to tell me what to do. I guess they don't know. In the past Molly seems in favor of more meds, but she has come to appreciate that I drive and I work. I need to function with clarity, rather than in the fog of total pain relief.
I left. I gave the guy my ticket to get my car. He came back, asking if there was a secret to starting my car. I could see Jet White parked on the street about a block down. I told him I could get it. My long walk down the street I thought "Gosh, I really could use my walker!"
Sunday, November 18, 2007
The park that nobody loves...
A Park That Ran With the Wrong Crowd - New York Times
Here's a link to the park...
No motor vehicles...I won't be going there...
Saturday, November 17, 2007
Work discrimination....
Disabled employees experience discrimination and prejudice at work as one in 10 pay for workplace ad
Have I experienced prejudice or discrimination in the work place? Interesting question...
I don't really know.
Early in my career with the state, I typed case notes. A caseworker insisted that I misspelled the word "inconsistent". I use to be a copy editor. The word was not misspelled. I wanted to copy the dictionary entry for the word...but I didn't. Was the caseworker prejudice against me? I don't know.
I have been overlooked for a couple promotions. Sometimes I feel that if I were not disabled that I would have gotten more of the promotions I have gone for over the years. The job I have now I applied for three years before I got it. I had one person up against me. I had more of the technical skills needed for the job; she got it because she was more social. I figured if I did not have the speech difficulty I have that I would have gotten the job.
I try to let stuff roll off as quick as I can. You only hurt yourself hanging onto stuff.
Bad stuff happens....good stuff happens...you roll on.
But Judge....sir...
Disabled scooter rider facing DUI charge - The Money Times
Sunday, November 11, 2007
Disabled in cartoons....
Here is a website for "Creature Discomforts".
I can't figure out if this will air on this side of the Pond...
Black eye for Oregon
One in five adults with developmental disabilities who are in state care have been abused. Nearlly 7 in 10 caretakers quit in their first year due to low pay.
I am thankful for my independence. I feel for those who are dependent on a system that is so taxed and under funded.
I pray that the Guv and the legislature can do the right thing.
Being a government worker, I know that doing the right thing usually takes money...and getting the money depends on how hight it gets on the priority list.
Sigh...
Wednesday, November 07, 2007
More parking antics....
I saw a disabled parking space available, so I turned into the lot.
OMG!
Not enough room for Jet White, our big Dodge Sprinter,...again!
Backing out onto burnside would be impossible. Pulling into the space might be possible, but pulling out would not.
What to do!
I tried to back in, but as I turned the wheel I was too close to the building. I kept pulling up perpemdiculer, closer and closer to the parkes cars. I cranked the wheel real hard. Cleared the end car and the building, and I parked.
Whew!
Tuesday, November 06, 2007
Joba Chamberlain and his dad

The part that describes Joba helping his father get his scooter out of the car reminded me of how my own son helps Jodie and I with ours.
I also like that his dad has a scooter just like mine.
Sorry that it is a 17 page article. A very good read!
Monday, November 05, 2007
Friday, November 02, 2007
Catch me at Disaboom
A coach getting his due honor
Mark was born with no hands. His bio is impressive.
He will be honored this weekend as one of Liberty Mutual coaches of the year.
I can't find a reference to it online, but in a local newscast Mark said when a player goes down he likes to put up both his arms and ask "How many fingers am I holding up?" It made me laugh.
Wednesday, October 31, 2007
Zero clearance...
I am a poor judge of the heighth of Jet White, our Dodge Sprinter. Eight feet, four inches is tall.
I pulled into the garage. I heard the antenna hit the ceiling, but I seemed to fit okay. I pulled into a disabled parking spot. When I got out of Jet White and walked around back to unloaded my scooter, I was horrified to see that there was not clearance between the top of Jet White and the ceiling of the garage --- it was pretty much touching it!
Coworkers Ruby and Sheri walked up as I was getting my scooter. They could not believe what I had done! The front of the van was in the open, but the back of the van was under the covered area. Out radio antenne is on the front, centered on the roof. It looked like it would snap off when I backed out. Ruby and Sheri just knew it would.
Ruby went out by the van during afternoon break for a smoke. When she came back to the meeting room, she told me there were some "suits" looking at me van, and that they wrote down my license.
When the meeting was over, I went down and started loading my scooter in the van. As I was backing onto the lift, a security guy drove by and told me to tell whoever was driving the van to be real careful when backing out. He did not know that the guy with CP on the scooter--me--was the driver of the van!
Ruby and Sheri drove by and backed into a nearby space. Wanting to see a train wreck, wanting to help me if I needed help, wanting to help me get my broken antenna. I couldn't blame them...it was going to be interesting!
I very slowly backed out. I heard the antenna moving around, but I did not hear any scraping.
As I pulled into the open, Ruby and Sheri were both giving me a big thumbs up. I made it!
I went and picked up E. I asked him if the antenna was still there. "Dad, what did you do?"
What can I say? I am good.
No...I am lucky!
Sunday, October 28, 2007
Jodie and I updated our rides.....

CelebrityX
We did not go through insurance this time. We wanted a slight upgrade.
It's expensive being disabled...anybody notice that?
Our old Victory scooters...six years old...Mine was banged up by having to be lifted into the old minivan and hitting the bar in the hitch that was needed for the outside lift the Jodie's scooter rode on.
Sunday, October 21, 2007
Access blocked!
There was not a place to park close to the field of play, so we drove down to the larger lot. I like having the more space for our big White Bus -- we never have decided on a name. Jet White?...I'm still not sure.
E got out and ran to join his team for pre-game scrimmage.
Jodie and I unloaded our scooters and headed for the field. Westmoreland Park is a Portland treasure. It hosts a huge pond with lot's of ducks. Feeding the ducks is at Westmoreland Park should be on the top ten list of things to do in Portland.
There is only one access ramp in this area the park. Here is a street view photo. It is a simple blacktop ramp.
It does the trick -- when it's not blocked!
Jodie and I scooted down to the ramp. The two disabled parking spots were filled, as were all the parking spots nearby. On the ramp was parked a lady in a SUV who had her car running and was working on getting her son's football pads on.
I was annoyed; Jodie was ticked!
The lady saw us. She was obviously sorry, but she was getting her boy ready. She was the only adult, with other kids in the car.
I had empathy for her situation, but where is the empathy for us?
Able bodied people will not understand what blocked access feels like until they themselves or a loved one they are with cannot get where the need to go because of a blocked ramp.
The mentality that "I'm only going to be a second; there are no wheelchairs around..." -- you know, this is the number one barrier that still exists for the disabled.
A ramp is access. A ramp that is used as temporary parking is not access. Able bodied people don't understand this. They assume that we, the disabled, have more patience than they do.
It is hard to think of a good example of an able bodied person having their access blocked. All I can think of is a freeway on ramp blocked by a parked car. The driver was running into the store to get a pop, or getting their kids football pads on. You pick the scenario. For someone wanting to access the freeway, they want access now. Yes, there could be an emergency scenario that closes access.
The point is that you would not close a freeway on ramp for non-emergent reasons. Drivers are not going to have patience to wait for that. Why should the disabled wait?
As it turned out, I drove up the ramp....very tight fit. The lady then backed up and let Jodie use the ramp. She then pulled back on the ramp.
I got the feeling Why can't they (the disabled) just wait for me?
Saturday, October 20, 2007
Neil Young's best ever - Chrome Dreams II
I loaded this on my Zune and listened through it twice at work.
Classic Neil...shivers down my spine.
"Ordinary People" is an 18 minute epic. Awesome lyrics!
Friday, October 19, 2007
Tuesday, October 16, 2007
Disabled on Segways?
What's wrong with scooters? I can't stand that long...
Saturday, October 13, 2007
Very sad...
Laurie Recht, disabled mother, with a 14 year old daughter, Rebecca Recht, who had cerebral palsy, had a tough life.
Public school was hard for Rebecca. Kids teased and bullied her. Laurie pulled Rebecca out of public school and got her into private school.
Peter Yarrow of Peter, Paul and Mary fame, came twice to hold benefit concerts to help with Laurie and Rebecca's expenses.
It wasn't just the private school. Rebecca was having other medical problems that doctor's were trying to diagnose.
Laurie was trying to make ends meet with her disability check, selling whatever she could on craigslist, and trying to start a online business.
Jodie and I were talking about this story. It hits home with us in so many ways.
We attended Holladay Center together as kids. In the 60's and 70's it was a school for the disabled in Portland. Jodie and I remember it fondly as a safe place where we received specialized attention--physical therapy, 0ccupational therapy, speech therapy. I was a "pusher" when we went on field trips because I could help push the wheelchairs.
We were eventually maintstreamed. I went to Beaverton schools; Jodie went to Portland schools. My mainstreaming experience was generally positive. My main accommodation was a typewriter that followed me wherever I went.
Jodie's mainstreaming experience in Portland Public Schools was bad. Stairs, no elevators or ramps. One teacher did not like the sound her crutches made. One school made Jodie sit in the counselor's office for the entire year because they could not (would not?) stop other kids from knocking her down and bullying her.
Jodie and I feel for the struggle that Rebecca went through in public school.
Here's a story about a television executive who sued and won a lawsuit requiring New York to pay for his son's special education at a private school because the public school was unable to provide it.
Laurie, a single mother with the responsibility of raising a daughter. Trying to find a job as a disabled person is not easy. I had a college degree when I went looking for work, but it was not enough. I had to volunteer as a way to prove myself. Making money off the internet, as Laurie was trying to do --- it sounds easy, but it's not.
Jodie and I have the love and support of family. We have been blessed with faith in God.
I wish Laurie and Rebecca were still alive. I wish they had found the hope and support to keep going.
Thursday, October 04, 2007
Disabled smoke more?
The Associated Press: People With Disabilities Smoke More
Wednesday, October 03, 2007
Blogging About Disabilities
Blogging About Disabilities « Lorelle on WordPress
Blogs for suggested reading:
- Fang World - The secret diary of a disabled blogger in the early 21st century
- Disabilities Studies Blog from Temple University
- High on Hope - Blog for helping to improve the health of needy people
- Jeff Space - Blog on living with Duchenne Muscular Dystrophy, or DMD
- Erik’s Multiple Sclerosis Blog
- Did I Miss Something - Blog about a differently-abled woman
- Disabilities Unlimited
- Schizophrenia Daily News Blog
- The Gimp Parade
- Rolling Rains Report - Dialogue on Travel, Disability, and Universal Design
- Broken Clay Journal - Living with Multiple Sclerosis
- ADHD and Me
- Gimp Eye for the Clueless Guy
- Adventures in Autism
Disability is not for sissies...
Pattaya City News - Latest News Story
Saturday, September 29, 2007
Message board for disabled parents
I found information about families with one disabled and one able bodied parent. I found horror stories about ladies with Jodie's brand of cerebral palsy who had a child and the birth event caused them to be paralyzed.
I stopped searching the boards.
Here is a new message board from Ouch! that looks good:
BBC - MESSAGE BOARDS - Ouch! - Ouch! Parents
Jodie and I did go to one occupational therapy session prior to E's birth. I was surprised that most of the session was focused on me, the dad. Jodie and both have cerebral palsy, but my arms and hands are more affected. The main thing I remember from the session was handling a 2 liter bottle of water in a sling, simulating what it would be like to handle a baby.
Reality turned out to be much different. I never did carry Eric. We used a stroller inside the house to get Eric wherever we needed to. Jodie did the major handling of Eric when he was a baby, but I did everything I could to support her. I would distract him with a rattle when Jodie had to change his diapers. I crawled with him on the floor. I drove to the store to get more formula and Pampers. I was a dad.
Now we talk politics and history. I pick him up from football practice, basketball practice and baseball practice. I never miss a game. I am a dad.
Wednesday, September 26, 2007
Karen Gaffney
I remember Karen's 2001 swim across the English Channel. No simple feat for anybody. It took grit and determination.
This month Karen took on a new challenge. I am moved that Down Syndrome does not need to be in the headline to make this a story: Local woman makes history with Lake Tahoe swim KATU - Portland, Oregon Local & Regional
A film is in the works. Here is a blog about a film documenting Karen's swim across Lake Tahoe.
And Karen is the president of a self-named foundation "dedicated to championing the journey to full inclusion in families, schools, communities and the workplace for people with Down syndrome or other developmental disabilities."
Karen's newsletter tells about inclusive arts and exercise programs that she is involved in.
I see life and joy in her face. I admire her spirit.
Thank you Karen!
Monday, September 24, 2007
Pet Peeve...
The disabled spot next to the one we were parked in was empty, but parked in the striped area was a Toyota truck.
I really hate when people park in the area between disabled spots. People seem to think that by parking in the striped area that it is less of a wrong than if they parked in the vacant disabled spot.
Oh so WRONG!
The striped off area is where I park our scooters while I am getting the lift up and down. It is where people who use wheelchairs maneuver in and out of their wheelchairs. We use that area to open our doors wider so we can get in and out of our car easier.
I parked my scooter in front of the Toyota. What I did not realize at first was that the Toyota truck was my nephew's! He has not been driving long. He is 15 and had driven to the park with his mom, my sister-in-law. My dear sister-in-law had told my nephew it was okay to park there.
My nephew could tell I was upset, but he and his mom, everybody was laughing it off. That made me madder.
Jodie has had cerebral palsy from birth. He sister should know better than to teach her son that it's okay to park illegally between two disabled parking spots...but she doesn't.
They were laughing about it. More words from me weren't going to make them understand.
It's nice to have a place to vent.
Friday, September 21, 2007
Disabled kids fitting in...
Girls Bask in Their New Destiny: Cheerleaders - washingtonpost.com
I was on the chess team in high school. I was able to go to different schools to play. I was the team president. I could beat beginners, have long drawn out games with mediocre players like myself, and get whipped by good players. Being part of a team was priceless.
These kids and their supporters are champions. God bless them all.
Monday, September 17, 2007
Stop...or we will shoot!
The police had trouble subduing Chasse. He was tasored and beaten in this effort. Chasse had schizophrenia. A positive to come from this is that the police are being better trained to deal with the mentally ill.
I remember visiting a missionary in San Francisco in the mid 80's. The Reagonomics solution to the mentally ill was a one-way bus ticked to San Francisco. I'm not certain how true that was, but I know services to the mentally ill were cut then and have never rebounded.
The mentally ill end up in the hands of the police, and they fill our jails.
I like to listen to Lars Larson at lunch time. I disagree with a lot of what he says, but I enjoy the discussion.
Today I had to turn my radio off. He really bothered me with his ignorance.
Lars put all the blame for Chasse's death on Chasse himself; that he should have stopped when the police told him to; and that his family should have taken better care of him.
Lars went on to say that the police should be told where groups of mentally ill live. He called these places "Loony Bins." I was really shocked!
I was introduced to a guy named Tobin when I was a student at Oregon State University. Tobin was not a student at the university. He had manic depression pretty severely, and Corvallis was a quiet college town for him. He liked to walk great distances. He was into heavy philosophy. I felt like a lightweight intellectually when I was around him.
A couple years after I graduated, I was between jobs. Tobin put the money up for a road trip to California. I drove. He made me mad one night. We had walked the boardwalk in Santa Monica. Some homeless folk offered bong hits and Tobin took a couple. As we were heading back to where we were staying, I was getting onto the Santa Monica Freeway. Tobin got sick and opened the car door. I was soooo mad!
I got married, and then a few years later E was born. I never was real close to Tobin after that trip. I felt guilty.
He moved to Portland, against his mother's wishes. A bigger city, more for Tobin to see and do, but more trouble to get into.
For peole totally unfamiliar with mental illness, a large part of dealing with it is finding the right medication that treats the illness. The tragic part is that the perfect medicine looses its effectiveness as the person's tolerance to it increases.
A few years ago Tobin died. He was walking along I-5 and he stepped in front of a truck I think it was.
Lars must not have a Tobin or a James Chasse in his life. If he did he would see the need for mot mental health services and for more awareness, not just for the police, but for all of us.
Wednesday, September 12, 2007
Environmentally friendly bomb?
"Channel One television said the new weapon, nicknamed the "dad of all bombs" is four times more powerful than the U.S. "mother of all bombs."
"The tests have shown that the new air-delivered ordnance is comparable to a nuclear weapon in its efficiency and capability," said Col.-Gen. Alexander Rukshin, a deputy chief of the Russian military's General Staff, said in televised remarks.
Unlike a nuclear weapon, the bomb doesn't hurt the environment, he added."
Sunday, September 09, 2007
Prisons Purge Books on Faith From Libraries - New York Times
Prisons Purge Books on Faith From Libraries - New York Times
“It’s swatting a fly with a sledgehammer,” said Mark Earley, president of Prison Fellowship, a Christian group. “There’s no need to get rid of literally hundreds of thousands of books that are fine simply because you have a problem with an isolated book or piece of literature that presents extremism.”
There is still a lot of religious titles available -- 150 from each of 20 religions. The Bible is still there.
Eight titles from C.S. Lewis are in; all Robert Schuller are out.
150 titles seem generous, but to inmates with years served and years to go it's not.
It is meant to weed out extremist religious material. Prisons evidentally have become a fertile
ground for Muslim extremism.
As with so much with this "War on Terrorism", the liberties of many are being sacraficed in an effort to possibly prevent the evil deeds of a few.
Wednesday, September 05, 2007
Jerry apologizes
The Associated Press: Lewis Drops an Anti-Gay Slur on Telethon
Let's forgive him people!
Monday, September 03, 2007
Jerry Lewis telethon
My admiration for the telethon goes up and down. I think it is a good way to bring disability awareness to people, but I don't like the pity it pleads for.
I remember my mom telling me that as a child I was asked to be on the local part of the Easter Seals telethon. They wanted me to sit in a wheelchair, even though I did not use even a scooter at the time.
It was a show...yanking people's heart strings to get money.
This blog selection is angry about the pity aspect, as well as Jerry referring to people in wheelchairs as being half a person.
And there is the controversy over whether Jerry used the other F word on this year's telethon.
This year's telethon netted more than $3 million over last year's.
This guy claims that muscular dystrophy was cured 15 years ago, and continuation of the telethon is a charade to keep Jerry happy.
The telethon has given birth to an online protest.
I quickly get bored by it. I keep it on because Jodie likes it. She loves Jerry and the whole "Jerry's kids" thing. She always says that the research that is done on behalf muscular dystrophy could eventually lead to cures for conditions like what we have --- cerebral palsy. And, in a weird kind of way, Jerry is a loving earthly father figure on behalf of the disabled --- a Santa Claus of sorts.
Why ruin that?
Saturday, September 01, 2007
P W D
Giving hope to the physically challenged - INQUIRER.net, Philippine News for Filipinos
I have heard the term persons with disability before, but I have never seen the PWD term before. It seems like a clean, descriptive acronym.
Wikipedia defines PWD as persons with disability or Portuguese water dog.
Hmm...

